Ethan & Choco's Book Club

Striving to make access to books and reading a core part of the care that kids receive in the hospital, with the premise that literacy support for children fighting cancer and other life-altering conditions can help promote cognitive health and social connections that are part of thriving through treatment and beyond


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A Successful Morning at PCRF’s Reaching for the Cure!

We had so much fun at Pediatric Cancer Research Foundation’s Reaching for the Cure race this morning. What a terrific event for such an important cause. It was really amazing to see so many people at one event all supporting pediatric cancer– MANY running for family or friends or even themselves who are currently battling cancer, survived cancer, or are no longer here. Ethan did a great job managing the spin wheel and giving out books and prizes while also sharing the mission of ECBC and spreading the word about BOOK IT! #2 (which will be on September 8th, 2019). A big thanks to Barry Ackerman/KIDS READ! for helping with our booth and providing gently used books to hand out to kids!

Ethan and I enjoyed walking the 5K as well, and we were especially thrilled when we realized that the event’s AWESOMELY ENERGETIC MC Andrea Kooiman is who we just hired to MC at BOOK IT 2019!!!


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Outpatient Infusion Center (OPI) delivery

Keeping these shelves stocked with books at CHOC Children’s Hospital OPI is fun!  These shelves were always empty for the 3.5 that Ethan received his outpatient chemo here! Nothing fancy and the easiest part of ECBC to keep going , but it’s just as rewarding as the other programs we do. Every time we return the shelves are empty — it’s good to know that at least a small part of kids’ visits might include some reading instead of screen time!!


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One Year Off Treatment

Friday was ECBC Co-Founder Ethan’s one year off treatment oncology visit and today marks the one year anniversary of his last day of chemo. Bloodwork and onc visits now get spread out a bit more as we start his second year off treatment, halfway through the two year window of the highest risk for relapse. Ethan is thriving— happy and healthy.
#Grateful.
#kickedcancersbutt
#GivingBackWithECBC


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ECBC’s New Year’s Update

 

Helping Hospitalized Kids

Thrive with Books and Reading

 

This past year, Ethan & Choco’s Book Club (ECBC) continued to help hospitalized kids, especially those battling cancer and other life-threatening conditions, thrive through treatment with the help of books and reading. We are thrilled to share a few highlights from 2018 as well as our plans for 2019.

2018 Highlights: Last year ECBC…

  • Launched our inpatient Bedside Reading program, called “Reading Aloud in Every Room”, on the oncology and neurology floor at CHOC Children’s Hospital. An amazing team of trained, “expert reader” volunteers offer engaging read-alouds using high-quality literature to patients of all ages. Pilot data will be analyzed after the program has been running for a full year, but a preliminary look at the data shows a very positive patient response, with many more patients than expected  saying “yes” to reading and putting down their screens! 
  • Launched our inpatient Mobile Book Cart program, where volunteers transport a “library on wheels” to gift new, high-quality books to patients in isolation at CHOC.
  • Pulled off our inaugural community fundraising event — BOOK IT! Racing for Reading for Hospitalized Kids. BOOK IT! was a huge success, with almost 500 registered runners, over 500 new books collected, and enough money raised to fund a year’s worth of Read+Think+Thrive Boxes for new cancer diagnoses at CHOC.
  • Continued to host monthly Super Book Give-Aways in the hospital lobby alongside MaxLove Project’s Thrive Parties, giving away new books to patients and siblings of all ages.
  • Began delivering new books to CHOC’s Outpatient Infusion Center (OPI) to restock their shelves on a monthly basis. 
  • Hosted our 2nd annual BOO-KS for Treats on Halloween, giving away approximately 350 new Halloween-themed books to CHOC patients and siblings who were stuck in the hospital on Halloween. This year, we had Halloween books for teens and young adults, and it was especially fun to see so many teens trick-or-treating for books!
  • Continued to provide Read+Think+Thrive Boxes (mini-library of 10 new books and crafting supplies) to new cancer diagnoses at CHOC as well as occasional other boxes for new diagnoses outside of CHOC.
  • Officially incorporated as a California nonprofit corporation!

With your support in 2019, we plan to focus on these 5 goals:

  1. Expand our bedside reading program so that it moves from one day a week and one floor to multiple days a week and multiple floors, thus working towards our goal of offering reading aloud to every patient every day they are in the hospital (which would meet recommendations of the American Academy of Pediatrics of fifteen minutes per day of reading — a practice that hospitalized kids, especially those battling life-threatening illness and not in school, so very need.
  2. Expand our Mobile Book Cart program to more floors, and more significantly, add a Lending Library Cart to our current Gifting Library Cart so that patients can check out books and have more access to more titles and greater variety.
  3. Work with CHOC Children’s Hospital to systematically deliver a Read+Think+Thrive Box to every child at the hospital diagnosed with cancer or another life-threatening illness, and raise enough funds to scale up this program beyond CHOC to another children’s hospital in California. Also, to begin online referral of book boxes to other kids diagnosed with cancer around the country. 
  4. Continue our book-give away events at CHOC, including our monthly Super Book Give-Away with MaxLove Project’s Thrive Parties and our annual BOO-KS for Treats on Halloween, and also continue to re-stock OPI’s shelves on a monthly basis.
  5. Host BOOK IT! 2019, hopefully increasing the number of participants running and the number of books donated. BOOK IT! #2 will be Sunday, September 8 2019, location to be determined. Please SAVE THE DATE!

We are so grateful to our community of supporters who helped ECBC this past year. A special thank you to our greatest donors and partners, including: Alane Adams and Rise Up Foundation, Barry Ackerman and Kids READ!, MaxLove Project, CHOC Children’s Hospital, Tod and Sharon Paris, Mary and Vaso Adzich, Orange Coast College, Once Upon a Storybook, Creston Books, Orange County Children’s Book Festival, Emily Frye, Arroyo Elementary School, Tarbut ‘V Torah Community Day School, Myford Elementary School, Pakua Martial Arts, Scholastic Books, National League of Young Men Tustin, Girl Scout Troop #3152, Hanna Calderone’s Bat Mitzvah Project, authors Sheri Fink and Derek Taylor Kent, authors Ganit and Adir Levy, Diana Mordin, Ashley Netsky, Dennis Dubrow, Rob and Brooke Lieberman, the Fourth Tuesday of the Month Book Club, and Adriene Madden/Magic Tree House.

Given our ongoing programs at CHOC Children’s Hospital and the significant number books we are giving away, we need to increase incoming funds and books, as well as create more partnerships with schools, corporations, publishers and philanthropic groups that can provide ongoing support. We’re currently giving away more books than we’re receiving, which we need to change in order to sustain the work we are doing! Please help us have a good start to 2019 by supporting ECBC in one of these ways:

  • Make a one-time or a recurring monetary donation to ECBC.  CLICK HERE to donate.
    • $20 funds a new hardcover book for the Lending Library
    • $50 funds five paperback books for the Gifting Library (or two hardcover books)
    • $100 funds a Read+Think+Thrive Box for a child newly diagnose with cancer
  • Purchase books from our Amazon Wish List to donate to our Lending and Gifting libraries — books will be sent directly to ECBC. CLICK HERE to access our list. Or,  CLICK HERE to access the wish lists to donate books for Read+Think+Thrive Boxes.

We can’t wait to continue to work on making books and reading a core part of the care that CHOC patients receive! Our ultimate goal is to help bring books and literature-based experiences to children’s hospitals around the country, so as we work to build our program at CHOC, we always have the dual goal of creating a model that can be applied elsewhere. THANK YOU for being part of our efforts!

A bit of recognition from CHOC

Sandy and Cindy, two of ECBC’s Bedside Reader volunteers, with our Read-Aloud Wagons

Charity run participants “booking it”!

BOO-KS for Treats at CHOC!

 

 

 

 

 

 

 

ECBC’s Gifting Library cart

 

 

 

 

 

 

 

 

 

 

Ethan & Choco’s Book Club is a public benefit, non-profit corporation, EIN83-2934289. 501c3 status pending.  


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BRBR! Bedside Reading Brief Report

Two of ECBC’s expert bedside readers with the Read Aloud Wagons

We had such a fantastic afternoon at CHOC yesterday, bringing books and reading to patients in all sorts of ways! Our bedside reading team spent the afternoon on the 5th floor (oncology, neurology) — getting almost  100% “yes”s to their offers of a read aloud from our Read-Aloud Wagon. It was super fun to see one patient receive her fourth Book Band (there are 10 ECBC Book Bands that patients can receive and collect for each time they accept a book or a read aloud), and especially to be very proud to be wearing them all. Our bedside readers also gave away a bunch of books to infant through teenage patients in isolation. In addition, we did our monthly book delivery to the Outpatient Infusion Center (“OPI”), where Ethan received all of his outpatient chemo — re-stocking their shelves with approximately 80 books for patients and siblings to read and take home.

Finally, as of yesterday, we explicitly communicated with CHOC that we are now ready to systematically provide a Read+Think+Thrive Box for every new cancer diagnosis at CHOC. Prior to this, we have been providing our book boxes informally and sporadically as we hear about them through MaxLove Project and word of mouth. From here on forward, CHOC will reach out to ECBC as kids are diagnosed so that we can provide a book box that is curated by age and gender of the patient right after diagnosis — which, as we know personally, is a time when books and reading are not on the forefront of caregivers’ minds but if put right in front of them perhaps will be embraced and provide comfort. A few hours after committing to providing the boxes systemically, we received an email from Child life about a newly diagnosed kid — so we promptly got a box together for a 7-year-old girl and delivered it.

Ethan and I are super excited about the Read+Think+Thrive Box program, and we’re eager to work on ramping it up so that we can more seamlessly assemble and deliver boxes to kids at CHOC. That being said, we need ongoing funding to be able to continue to provide boxes as kids are diagnosed. If you would like to support, click here to learn more about our Read+Think+Thrive Boxes, click on any of the links on that page to donate a book from one of our RTT box wish lists. or click here to fund a single RTT Box or an RTT Box monthly at $100/month (which would cover one new diagnosis each month). 

What a successful Thursday at CHOC!!

the RTT Box that yesterday went to a 7 year old just diagnosed with cancer.

 

 


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Ethan & Choco’s Book Club is a new student club at Foothill High School!

These awesome girls just started an Ethan & Choco’s Club at Foothill High School — the first of hopefully many school-based clubs to support ECBC and reading for hospitalized kids! The three of us met this afternoon, and the girls decided to focus their club’s efforts on building the teen part of our library — including the lending and gifting libraries, themed books for teens at various events such as our upcoming Books for Treats, and Read+Think+Thrive boxes that are curated specifically for teens. They also are excited to work on creating an Amazon Wish List of high-interest books specifically for teens — which we really need help with! How great would it be for them to draw from their own reading interests and experiences as well as the reading interests of their peers to create this list! There is a significant number of adolescents and young adults at CHOC, and it will be great to have some targeted support to build this important part of our library!
Foothill High’s Club Rush is coming up next week, and Riley and Aya will be promoting this club and recruiting new members. Please tell your teen if you think he/she might be interested in joining. Or suggest they they start their own ECBC Club at their own school! (Contact Ali Posner at ECBC@maxloveproject.org if interested.)
THANK YOU RILEY and AYA for taking the initiative and hopefully creating a movement for high schools and teens to support reading for hospitalized teens! #FoothillKnights #ECBCatFoothillHigh #BetterTogether #ItTakesACommunity #ReadThinkThrive #HospitalizedKidsNeedBooksToo 


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Another successful afternoon at CHOC!

ECBC had a terrific afternoon yesterday at CHOC, with two of our programs going on at the same time and with such a good response. On the 5th floor (oncology/neurology), our bedside readers visited patient rooms with the Read-Aloud Wagon and read aloud with almost every available patient on the floor. We received so many more “YES”s to reading than we anticipated! And on the hospital lobby, ECBC gave away many books off our Gifting Library Cart to patients and siblings who came down for MaxLove’s Be Super Party (see photo — unfortunately we can’t share pics of patients). It has been a wonderful first four weeks since launching our program — so rewarding to see plans in action, to see books becoming part of patients hospital experience!


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Quick Report: Week 2 of Our New Inpatient Program

Just a quick update on week two of ECBC’s new inpatient bedside reading and mobile book cart program: Last week, we had a launching party in the playroom, where ECBC volunteers read aloud an interactive book about color mixing and guided patients to do some of their own color mixing in blank books and on blank puzzles. This week, we started our visits to patient rooms — where we asked patients if they were up for a read-aloud and possibly a related craft. Patients get visited by so many different people during the day, so often it can be difficult for an unknown volunteer to get a “yes” when asking to enter a patient’s room. We were SO thrilled that all but one patient/families said YES to a read-aloud! We read aloud with patients between the ages of 2 and 9, and volunteers’ reading resulted in patients putting down their ipads, getting engaged in a good story, making predictions and personal connections, and wanting more on a different day! One father of an oncology patient even said as an ECBC volunteer left the room: “Thank you so much, that was just what the doctor prescribed today”… which is actually a goal of ours, that someday “reading aloud” will be included in doctor recommendations as part of helping patients thrive during their hospital stays. #ECBC#Bedside Reading #ReadAloudEveryDay#HospitalizedKidsNeedBooksToo #ReadThinkThrive


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And Our Inpatient Program has Finally Started!

As of yesterday, ECBC has officially started our inpatient bedside reading and mobile book cart program at CHOC Children’s Hospital! It has been a long road to get here, but we are THRILLED to be able to finally bring books and reading to patients ON THE FLOORS (ie Oncology floor), not just in the lobby — reading aloud, using high-quality literature and trained “expert” readers, giving away books to patients in isolation via our new Gifting Library Cart, engaging patients in book-inpsired crafting, and getting patients excited to take a break from screentime! THANK YOU to Susie Alexander and Sandy Tweedt for helping to make our launch event so successful; I’m SO grateful to have such AMAZING volunteers! 

Our inaugural charity run is just 3 days away — it’s not too late to sign up! As we start our new program at CHOC, we have many new and ongoing program expenses, so we can use all the support we can get! Please join us and help us bring books and reading, and eventually a lending library, to CHOC Children’s Hospital! Click HERE to register. 


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Last hospital book delivery as a patients who’s currently in treatment!

We just dropped off another 100 new books at the Outpatient Infusion Center (OPI) yesterday, when we were there for Ethan’s LAST spinal tap and chemo through port. 3 1/2 years of chemo at CHOC, and we’re now left with only a week of steroids, 24 days of oral chemo, and port removal surgery. It as been quite a few years, with so many hard times, but an equal number of joyful moments. Starting Ethan & Choco’s Book Club has been among the best to come out of this long hard journey. We’re so grateful to be able to give back to this wonderful hospital and to all the cancer warriors out there, and to be able to do so in a way that’s so meaningful and personal for both Ethan and me.


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ECBC New Year Update and Next Steps

With the new year upon us, we are excited to share a few of Ethan & Choco’s Book Club’s highlights of 2017 as well as our next steps for 2018. We spent the past year with continued efforts to bookraise, fundraise, form partnerships, and raise awareness about ECBC’s mission to bring books and reading to hospitalized kids. ECBC now boasts a library of approximately 8000 new books — 6,000 in our Gifting Library and 2,000 in our Lending Library!  Ethan continued with online book request videos by sharing each month a list of titles that we need, and books continued to come in the mail. We thank our community for the abundant support we received this past year from individuals, kids and youth groups, teachers and schools, a few small businesses, and at some community events. We are especially grateful for the support of our most significant and ongoing donors and partners, including: MaxLove Project, Kids READ!, Once Upon a Storybook, Tarbut ‘V Torah Community Day School, Blue Moon Boutique, Irvine Kiwanis Club, Arroyo Elementary School, Saddleback Educational Publishing, National League of Young Men Tustin, Girl Scout Troops 3152, 3115, 4204, and 3307, Mrs. Kelly’s 4th and 5th grade classes at Arroyo Elementary, Quintus Financial & Insurance, Enderle Center, DOGO Books, Aidan and Amie’s birthday book drive, Tod and Sharon Paris, Barry Ackerman, Mary and Vaso Adzich, Bill Bellaty, Rob and Brooke Lieberman, Alane Adams, Alexandra Aldawan, Ashley Netzky, the Sherrill Family, and Nancy Sewell. And, we are so very humbled by the CarterStrong Book Drive donation of more than 650 new books — 100 of which are being used to create the CarterStrong Legacy Collection, which will hold a permanent place in our lending library and represent Carter’s legacy of joy, kindness, and relentless bravery. 

Without doubt, the greatest highlight of the past year is that we collected enough new books to start getting books into the hands of CHOC Children’s Hospital patients on a regular basis! This occurred primarily through our monthly Super Book Give-Aways at CHOC as part of MaxLove Project’s Be Super Parties. We also started to fill the empty shelves with new books at CHOC’s Outpatient Infusion Center, and we held a super successful first annual Books for Treats at CHOC on Halloween, giving away approximately 300 new Halloween-themed books to kids stuck in the hospital over the holiday. And, with the help of committed Girl Scout Troop #3152, we delivered ten individually curated book boxes (called Read +Think + Thrive Boxes) to SuperKids (at CHOC and around the country) with new cancer diagnoses or who had recently relapsed. Ethan was especially proud of these deliveries and is inspiring ECBC to expand this program in 2018.  

Goals and Plans for 2018.  With a successful year behind us, we are so excited for 2018!  We’re going into this year with these six key goals:

  1. First and foremost, we plan to launch the initial phases of our inpatient programs, starting with our bedside reading program in the first part of 2018 (“Reading Aloud in Every Room”) and  our mobile book carts (including Lending and Gifting carts) in the latter half of 2018 (“Books in Every Room”). We are especially excited about the mobile book carts because they offer an innovative way to provide a lending library to hospitalized kids without requiring a huge amount of space (which we don’t have yet).
  2. We will continue with our book give-away parties at CHOC, where we give away new books from our Gifting Library to patients and siblings who are able to leave their hospital floor and go down to the lobby. This includes the monthly parties with MaxLove Project as well as Books for Treats on Halloween.
  3. We are super thrilled to be working with MaxLove Project to create an ECBC library at MaxLove Project’s new outpatient survivorship center!!  We plan to create a beautiful, cozy reading corner with open-faced shelving, comfy seating, and books for all ages so that books and reading aloud are part of this beautiful healing space that helps SuperKids thrive through cancer treatment and beyond.
  4. We plan to create additional book nooks in various locations at the hospital that provide new books and reading for patients who otherwise are likely waiting with nothing to do or looking at screens. We will continue to provide books for the Outpatient Infusion Center, and we will work on creating new book nooks at the oncology clinic, the hospital admission waiting area, and in Radiology.
  5. We are excited to scale up Ethan’s Read+Think+Thrive Box program from the informal giving of boxes to more systematic distribution. With the new year, we have promised CHOC to work on a goal of providing a new book box to every new cancer diagnosis, which is about 5-10 boxes per month. Ethan decided to focus his monthly book request videos on asking for the specific books that are needed to fill each of twelve categories of book box recipients. Check out Ethan’s January book request video here, where he shares the titles needed for book boxes for preschool boys.
  6. This year, we are holding our first ECBC community fundraising event, called BOOK IT! Racing for Reading for Hospitalized Kids. This is a 5K race/1K Fun Run at Orange Coast College on Monday, May 28th (Memorial Day). Participants will receive a BOOK IT! T-shirt, medal, and electronic timing, and Kiwanis Club of Irvine will provide an all-you-can-eat pancake breakfast for $4 or a new book donation. We’re hoping for a fantastic turnout!  In addition to the race, we will work on renewing momentum for fundraising, continue to bookraise, and hopefully form many more partnerships with individuals, youth groups,  schools, and corporations. Especially as we give away increasing numbers of books and launch our inpatient programs, we will need significant ongoing support for sustainability. 

Please help us have a good start to 2018 by donating to ECBC in one of these ways:

  • Register for our race, BOOK IT!  Or, if you can’t make the race, on the race registration site you can donate $20 for a new book or $100 to sponsor a Read+Think+Thrive Box for a child with a new cancer diagnosis. Click here to register. 
  • Make a one-time donation or a recurring donation on our fundraising page. Click here to donate. 
  • Purchase books from our Amazon Wish List to donate to our Lending and Gifting libraries, or  contribute to our Read+Think+Thrive Boxes for new cancer diagnoses at CHOC — click here to access and donate from the list of books we need for preschool boys.

We can’t wait to continue to work on making books and reading a core part of the care that CHOC patients receive! THANK YOU for being part of our efforts!


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ECBC’s Super Book Give-Away Was a Success!

ECBC had a terrific afternoon yesterday at our FIRST Super Book Give-Away alongside MaxLove Project at CHOC Children’s Hospital! We gave away approximately 70 books to hospitalized kids and their siblings, with our youngest recipient being 22 months and our oldest being a 14-year old boy who said he was allergic to reading but then found a book about Alcatraz that he walked away with eagerly. A CHOC nurse walked by and commented, “It is so great to see books in our lobby, I don’t think I’ve ever seen that!” And a parent of an oncology patient snuck away with a pile of books and whispered to me, “I have to home school my child now, but I always forget to bring books to the hospital. It is just never on my radar.” Both of these remarks confirm why we’re so passionate about ECBC’s mission to bring books and reading to hospitalized kids! It was so fun to put books in kids’ hands, see them reading in the lobby, and watch them walk away excitedly with a new book about a topic of interest!

Because we’re still waiting to get through CHOC’s lengthy volunteer on-boarding process in order to start “Reading Aloud in Every Room” (our bedside reading program), we are working on other ways to get books into the hands of patients NOW! We plan to join MaxLove Project regularly for their monthly BeSuper parties at CHOC, and we are working on setting up other ways to bring reading to CHOC as well (ways that don’t require volunteer approval). To be able to gift books to kids at these events, we need the new books to keep coming in — so PLEASE keep donating if you can. Here’s the link to our Wish List on Amazon — books purchased from this list will be sent directly to ECBC. 

Thank you to Kids READ!, Saddleback Educational Publishing, and PBS SoCal for providing the books for this event!


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Please Donate a Book in Honor of World Read Aloud Day

img_1426Today is World Read Aloud Day (WRAD), which aims to bring global attention to the importance of reading aloud and sharing stories. I’m re-posting Ethan’s WRAD post from last year (click here to view), where he describes the importance of this day and reads aloud a favorite picture book. He also expresses his hope that on this day in 2017 (today!), all patients at CHOC Children’s are being read to. We’re not quite there yet, but we are getting closer to launching Phase 1 in the hospital, which is “Reading Aloud in Every Room”. Please consider donating a book from ECBC’s Amazon Wish List (click here) to help the kids at CHOC experience the joy and power of reading aloud!


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ECBC Update and Next Steps

oct-20-ethans-first-radio-show-bIt has been over a year since we launched Ethan and Choco’s Book Club (ECBC) with the MaxLove Project, and we are excited to share some of the highlights of 2016 as well as our anticipated next steps.  After launching ECBC on social media in December 2015, we quickly formed an amazing core team to start planning and fundraising, and shortly afterwards we received the green light from the CHOC Foundation to move forward with building a program at CHOC. We created a website, a fundraising page, a Facebook page, an awesome logo (thanks to artist Mike Kungl), and merchandise and promotional materials (thanks to graphic designer Emily Frye). And since then, we’ve been working hard to raise money, collect books, coordinate plans for starting up in the hospital, and build awareness and make connections in Orange County. Last year we raised over $15,000 in funds and collected over 5000 new books. Of these 5,000 books, 1500 are hardcover books for our permanent Lending Library, and 3500 books comprise the start of our Gifting Library — which is a separate collection of largely paperback books for patients in isolation who (per hospital protocol and infectious disease restrictions) cannot borrow books from the Lending Library. Ethan is proud that he completed Book Look #366 of his 2016 Book Look Challenge — his self-imposed challenge that he announced on the first day of 2016 to make a video of a featured bookthat he wants donated for every day of the year. Daily Book Looks were posted and linked to ECBC’s Wish List on Amazon, and books of all types and for all ages came in the mail almost daily all year long — making up the majority of our Lending Library to date. As part of our efforts to book-raise and build awareness, we set up our first booths at several events at Ethan’s elementary school, and then we enjoyed participating in larger events in the broader OC community, first at the Orange County Children’s Book Festival and then at a MaxLove holiday event at SOCO and the OC Mix in Costa Mesa. A few months ago, Ethan was inpatient for the first time in a while, which reminded him just how much books and reading are needed at the hospital. So he took advantage of being inpatient and spontaneously hosted a show on the CHOC radio station — where he introduced himself and his mission to build a library at CHOC, read aloud a few favorite books, and gave away about 30 books to patients. These were the first ECBC books to be put in the hands of kids at CHOC, and Ethan said “it was so awesome to finally get to share my love of reading with other kids at CHOC”! Near the end of the year, a terrific article about Ethan and ECBC was published on the front page of the Orange County Register (http://www.ocregister.com/articles/children-736490-books-book.html) — which was a definite highlight of the year and resulted in increased book donations and connections in the community. We finished the year with a Launch Party at the hospital, where we held storytime with five local wonderful children’s book authors, gave away 250 books to patients, and crafted books with MaxLove’s Therapeutic Arts program. It was awesome to end the year with so many books and so much reading happening in the lobby at CHOC!  img_0381

Without doubt, the greatest highlight of the past year was the tremendous support that ECBC received from so many individual donors, kids in action who created their own booths to raise money or conducted book drives at their own schools, teachers who organized class projects that resulted inbook donations, and support from our first book publishers and charitable organizations. We’re so grateful for the support of our most significant donors — Mary and Vaso Adzich, Jen and Jon Haft, Carol and Howard Hay, the Irvine Kiwanis Club, Kris Mauger/Burnham Insurance, PBS SoCal, Serge Melkizian/Quintus Investment Counsel, and the anonymous donors who generously gave at MaxLove Project’s 2016 Farm to Fork dinner. We’re also starting to create a growing list of ECBC Thrive Partners who have committed to providing ongoing financial or book support. Our initial Thrive Partners include Sharon and Tod Paris, Barry Ackerman, KidsRead and Milk & Bookies (two terrific nonprofit organizations that give books to kids in need); the local Tustin bookstore Once Upon a Storybook (which collects books in the store daily and joins us at many community events); Saddleback Educational Publishing; Girl Scout Troop #3115; Coventry Court Health Center; and Tarbut ‘V Torah Community Day School (our first Orange County School to commit to book-raising on an annual basis for ECBC after holding a very successful book drive in December).  We are so honored to have received so much support in our first year! img_0385

With a successful year behind us, we are excited for 2017!  We just received approval of a new volunteer position in the Child Life Department at CHOC — called ECBC Bedside Reader. This means that we can now finally start the four to five month hospital volunteer approval process, with a goal to launch Phase 1 of ECBC, called Reading Aloud in Every Room, midway through 2017. By the end of 2017, we hope to launch Phase 2, “Books in Every Room”, which is our Lending Library on mobile book carts. We will continue with our efforts to collect new books, and Ethan plans to do a monthly Title Talk (click here to check out his first Title Talk) that shares on social media the titles of some of the books that we need for the library (which will continue to be linked to our Wish List on Amazon). In the coming months as we are preparing to start the first two phases of the program in the hospital, we hope to renew momentum for financial donations after focusing much of the past year on collecting books and resolving organizational matters. We will be establishing new financial goals and plan on reaching out to our past donors and other potential individuals and organizations to help us meet them.  We will also be working hard to continue to form enduring partnerships with individuals, schools, corporations, and both youth and adult charity groups, since the unique demands of a hospital-based library mean that we will have significant built-in loss of books (largely due to the gifting of books to all patients in isolation). Just to be able to read aloud to kids in isolation means gifting books to them!  Creating a sustainable library at CHOC will depend on significant ongoing support from the community, so we hope this year many more ECBC Thrive Partners will join our efforts to bring reading to Orange County’s hospitalized kids! (You can click on the link to the fundraising site below to make a one-time or recurring donation.)  We hope that 2017 will close with the first two phases of ECBC off the ground, patients enjoying books and reading on a daily basis, more partners and significantly more funds, and the road paved for us to start thinking about our long-term goal of building a stand-alone full-service library for CHOC patients.  Just recently, Ethan commented “how cool it is that ECBC started out as just an idea, then a dream…and now it’s actually happening.” We can’t wait to continue to make strides in 2017 to make books and reading a core part of the care that CHOC patients receive!

Sincerely,

Ali Posner (ECBC Co-Founder)
Ethan Posner (ECBC Co-Founder and Leukemia Warrior),
and the ECBC Team.

To learn more or support ECBC:

Ethan Posner, 9,  in the area where he tapes his YouTube book reviews. Ethan Posner was diagnosed with acute lymphoblastic leukemia in 2014 and found reading to be great solace while hospitalized at CHOC.  Ethan started both a lending and gifting  library called Ethan and Choco's Book Club at CHOC . The family has collected over 6,000 books. He also continues his cancer treatment.  Posner was photographed on Monday, November 7, 21016.  (Photo by Ana Venegas, Orange County Register/SCNG)

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Ethan Posner, 9,  was diagnosed with acute lymphoblastic leukemia in 2014 and found reading to be great solace while hospitalized at CHOC.  Ethan started both a lending and gifting  library at CHOC called Ethan and Choco's Book Club. The family has collected over 6,000 books. He also does daily short video book reviews on YouTube and continues his cancer treatment.  Posner with a donation box built by his father. Photo taken on  Monday, November 7, 21016.  (Photo by Ana Venegas, Orange County Register/SCNG)

 

Ethan Posner, 9, with some of the 6,000 books he and his family has collected. Ethan Posner was diagnosed with acute lymphoblastic leukemia in 2014 and found reading to be great solace while hospitalized at CHOC.  Ethan started both a lending and gifting  library at CHOC called Ethan and Choco's Book Club.  He also  does short daily video book reviews on YouTube and continues his cancer treatment. Posner was photographed on Monday, November 7, 21016.  (Photo by Ana Venegas, Orange County Register/SCNG)


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TVT Community Day School is ECBC’s first Thrive Partner school!

img_0160-2How awesome is this?! A couple weeks ago, fifth graders at Tarbut V’Torah (TVT) organized a book drive at their school book fair, and the Lower School collected a total of 250 new, high-quality books for the library that we are building at CHOC Children’s Hospital! Afterwards, the school invited Ethan to their campus and presented him with the books in a very special school assembly. Afterwards, I sent a thank-you note to the school, and in return I received an amazing note from Laura Roth, the principal of TVT’s Lower School. Principal Roth’s note expressed TVT’s commitment to hold an annual book drive to benefit ECBC and CHOC. We are so excited to have our first Thrive Partner school (a commitment to ongoing annual support)! Thank you TVT!  Click here to view Principal Roth’s letter: tarbut-ecbc-thrive-partner-letter

I am sharing this letter in hopes that TVT can hopefully inspire other Orange County schools to get on board and support ECBC’s efforts to build a library for Orange County’s hospitalized kids. Building and maintaining a hospital-based library has some unique demands that include significant built-in loss of books, so we will need to have ongoing support from a variety of sources to create a sustainable library. We’re hoping that Orange County schools can be one key source of support!

Please consider helping your school join Tarbut and become an ECBC Thrive Partner school!  Here are four ways your school can help:

  1. Hold a new book drive at your school. Perhaps get your student leadership on board to organize a school-wide effort.
  2. Collect new books for ECBC as part of your school’s regular book fairs.
  3. Organize a book collection effort for ECBC through your school’s Scholastic Reading Club program.
  4. Collect needed items for Ethan’s Read+Think+Thrive Boxes, which will go to patients at CHOC who are in isolation and can’t borrow books from the Lending Library, as well as to kids battling cancer and life-threatening conditions across the country who have limited access to books. Contact ECBC at ECBC@maxloveproject.org to receive our R+T+T Box Needs List.

* Remember, per hospital policy, all books must be brand new.

Thank you again, TVT, for being our first ECBC Thrive School!


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Ethan & Choco’s Book Club LAUNCH PARTY at CHOC Children’s Hospital

img_0368Ethan had so much fun launching Ethan & Choco’s Book Club at CHOC Children’s Hospital yesterday! We had “Real Author Read Aloud” for around 2 hours and gave away approximately 250 books! Thank you MaxLove Project for letting us join your amazing Be Super Holiday Party, and thank you to Child Life at CHOC for hosting
us! We’re so grateful for the ongoing support of Susie Alexander and Once Upon a Storybook, Barry Ackerman and KidsREAD, and Courtney Collins and Milk & Bookies. And, we were so fortunate to be able to provide storytime by five wonderful children’s authors: Alane Adams, Stacia Deutsch, Sheri Fink, C.W Greunig, and Dan Paley — thank you! Finally, thank you to Alanni’s Gift of Words Club for your donation of so many copies of such a beautiful picture book (Wookiwoo, I love you).  We loved seeing all the reading and so many books in the lobby at CHOC!

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Author Dan Paley reading aloud his terrific Luigi and the Barefoot Races

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We’re grateful for the support of Author Alane Adams ( Ethan loves her picture books as well as her wonderful chapter book series The Legends of Orkney)

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Ethan & Choco!

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Thank you Audra and MaxLove!

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Ethan with Leukemia survivor Audrey, who just donated a bunch of great books!

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Thank you C.W Greunig for sharing your books with the patients!

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Thank you Mrs. Kelly for donating great books for our launch party!

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Ethan with his oncologist, Dr. Hyunh, who was happy to see so many books at CHOC!

 

 

 

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